Category Archives: spouse

Revisiting 7 and then 8 – and perhaps a dash on 9 – Find the Beautiful

Revisiting 7

I suppose my last post was a bit premature, though it was true. It is amazing how something gentle can shift everything, even if it is only temporary.

After my post, I went to a meeting for an organization I belong to. I expected to get lots of hugs and inquiries about my health and my status. I was looking forward to thanking people in person for their kindness, but felt shy about the possible attention.

The hugs were nice, the kind words and gestures were appreciated. I was glad to have gone and it was not as much of a burden to my shy side as I thought it might be,

But at the end, as I was walking away.  One of the friends who was there often for me asked me how I was and I replied with my usual. I am good, lots to be thankful for, one day at a time. She grabbed my arm and said lets sit and tell me what you mean by this one day at a time thing? 

I was stunned, she had latched on the the subtle nuance of such an expression and knew that my words were far cheerier than I felt. 

So we sat down, and I tried to explain that navigating the whole thing is complex. Yes, I fully see that there is so much that is good but that there is still the tough that needs to be dealt with. Being told you have cancer is more complex that I had thought, especially given the provisions that no chemo or radiation is needed, like those somehow would allow (key word here is allow)  someone to feel like shit. Please don’t think I am trying to diminish chemo or radiation and that people who have to go through that are somehow exception in some regard… because they actually are exception. What I feel like I am missing is permission to grieve this process and that my grieving is allowed to be more than just sad.  After I feebly tried to communicate these ideas to her, I just looked at the hands in my lap and said, I want to be allowed my pity party, I just don’t know how.

She touched my arm and said you are allowed a pity party and I want to be invited, lets go get some wine together soon.

It was so beautiful being allowed to feel this way instead of being held to strict gratitude. My heart filled with something, I would hope it was grace. 

I am not sure she knew what I was talking about or understood what I was trying to say, but she asked and then listened… holy moly… what a gift. She asked, she allowed me to tell her something closer to the truth about how I am feeling, In a world dependent on daily platitudes (“How are you?” – “I am OK”) it was mind altering to pass that realm and move in to more of the brutal truth.

It is part of the dynamic between celebrating that I don’t need chemo or radiation or that my tumor was so freakishly small AND the whole truth in that it was fucking cancer and it robbed me of some things that I held dear. I am grieving.




I don’t think I am headed to deterioration. I know I will be fine, but this is a part of what has happened and is happening to me. I own it. 

“Give sorrow words; the grief that does not speak knits up the o-er wrought heart and bids it break.”  ~ William Shakespeare

Then 8

After the sincere gesture of my dear friend, I felt more lighthearted yesterday. It was a busy day, work with extra duties, rush to help Squink finish his homework, a school meeting for an exchange program, and cub scouts.

I was too busy to notice much more than the heaviness of my surgery site.

A dash of 9

We all woke up early, and in good moods. I even served Squink some oatmeal and let him eat it in bed. On my way to the kitchen, I noticed how amazingly pretty my orchid plant was. 

It was beautiful. 


Squink was beautiful. 



My family was beautiful. And somehow everything else seemed less important.

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Life is beautiful – 6 & 7

Yesterday was tough, it is a tough spot right now. 

In my attempt to find the beauty, I failed… I mean, I had that poem, but I really found it the day before… and the rest seemed average and even hard.

It all, life, feels sorta like that – hard. 

I feel completely helpless in some ways (some very new ways) because I am just in a state… angry, mad, desolate to name but a few and all of them in one big huge swirling mass of emotional baggage.

I have no patience for this kind of nonsense. I have too much to do.

And, people keep calling me back to earth and reminding me that my behaviour is inappropriate. Which adds to this feeling of mixed mass emotions swirling and boiling and festering. Shame, I suppose. I am better than being an angry person.

I have moments of average, and when I see my son or husband I can claim joy. But that seems so selfish, in a way, to allow my son and husband to be my bringers of joy… what a HUGE burden to place on them. Guilt, I suppose. 

I am trying to remember to breathe, to mediate, to pray… but the words that come to mind when I do this are hard, and angry, and as my family reminds me… inappropriate.

I have and see so much to be grateful for, but these crazy emotions are so difficult to manage. 

How does one throw themselves a gentle pity party?


So let me conclude by stating that I suppose that the beauty I was able to find is that (#6) I am alive and (#7) I have people who love me. There is comfort in that. But, there is a tinge of insincerity in my heart with these right now. impatience, I suppose. 

The kind of beauty I want most is the hard-to-get kind that comes from within – strength, courage, dignity.  ~ Ruby Dee  

holding the darkness at bay

So, after feeling a down due to yesterdays ramblings and self flagellation I find I need to pick myself back up.

The other day someone came to me and asked how I was. I told her that is is a day by day process. That I feel good, that I am grateful for so much.

She went on to ask if I had experienced any dark moments, any depression, and tears. She added that her sister is a doctor and had told her to expect me to get to that point at sometime.

I cried when I got the first message. there is something about being told to call an oncologist that puts a certain indescribable pressure on your heart. To hear it while alone in an office, is hard because it means that you have to call people and share the news – and I will be very, very honest, that I was tempted to not tell anyone. Though I imagined that my husband and mom would have been extremely upset with me had I gone this route – in spite of that though, I can’t tell you how tempted I was.

I even called the oncologist first. I called my physician back and asked for a copy of the pathology report we talked about the long wait until my oncology appointment and then what the report meant in terms of what was happening inside my body. I went and sat by the fax and waited for the report to arrive (he was sending it right after we hung up). I got it and sat in my office, reading (memorizing) and mulling the news, tears in my eyes. I dried them, and decided I had to call my husband and so… I called my husband and told him the news. He was devastated (he had been a young boy when his mother had gone through two cancer diagnoses, I think that what was happening to me brought all those memories back) and I had to be strong and reassuring. After I hung up, I sat in the office some more, tears in my eyes again. Bracing myself for the call to my mom. She was walking into a meeting when she answered. I heard that stop in her voice. It was the same stop when I felt when I had to schedule an appointment with a hematologist oncologist for Squink after he was born.  Granted that was just for some jaundice we did not seem to be able to get rid of, and I knew that it was the hematology part we were seeing rather than the oncology part, but still – it isn’t something you want to deal with as a mom, your babies should never see an oncologist, that should be the rule.

So that was a quick conversation and I sat in my office again, a sense of “why me?” prevailed. My boss who had gone through that cancer route walked by and noticed I was upset, came in and I shared the news with her. After that, the next 24 hours are kind of a blur. I know I called my dad, and he was probably the hardest one to tell… but only because I had no idea how he would react, and he has a tendency to avoid bad things and go on and pretend as if they did not happen so the idea that he would ignore me in this was something I considered highly probable. I only remember that at some point by the end of that night, I was sick of talking to people. Wait, I love talking to people what it was is that I was sick of re-telling the story, the news. I just did not want to have to say that damned word again.

That has been the darkest point so far.

The days following are still a blur. I talked to my siblings, texted with Prima. Made arrangements for all the responsibilities in my life that would be put on hold. Sent out a group email to women who I adore. Friends put me on prayer lists, and I got through the interminable wait until that appointment. Once I saw the oncologist, it felt so much better, because there was a plan. I knew what was happening and it felt good.

I would even say that I was a bit jubilant the day before my surgery, because that mass of mutating cells was getting removed.

I was in the hospital almost a week, determined that this whole thing would not bring me down. I have managed to stay positive through the rest, even that horrid backslide where, through projectile vomiting and other effluvia, fever spikes and chills all intertwined with a general sense of feeling horrid, I lost over 10 pounds, got dark circles around my eyes and began to lose hair. I was still in a good place.

I have these moments that seem to want to step in to those dark shadows; when I noticed that there is an area near my incision is numb (normal, but a strange feeling), talking to someone else who has gone through this process evokes some teariness, after time spent wondering if I am avoiding dealing with something, being told I hurt peoples feelings all brought forth some form of gloom to my mindset.

Thankfully, they are able to be beaten back.  And I think that is my job right now.

More thoughts and a tale from my misspent youth

Reflection
Something I do a lot of right now.
As I watch, feel, and notice my body heal from a pretty brutal surgery… I reflect back on my life.
What is so amazing to me is that I have such a wonderful group of people here in my life now. 
A husband who waited on me through the surgery, held my hand, brought me food, made me eat when I did not want to, bought me more thermometers than he should have had to purchase for me as I lay in bed vomiting with fever and chills and consistently losing them to the depths of my mattress and covers, who rinsed the vomit bowl so I could have a clean bowl for the next round, massaged my neck that was sore from throwing up, is waiting patiently for my body to heal, fed me, clothed me, monitored me while I showered in case I passed out… crap, the list of things he did [is doing] for me is too long to even recall… I just know that I could not have gotten through the last few months without him. 
Then there are the folks that helped arrange food deliveries, delivered food, send cards, visited, called, sent a text… I am humbled by all of these things. 
An aunt who fought against her ingrained instincts and took care of me as best she knew how when my husband couldn’t stay with me.
My mom, who took time off and flew to be with me and watched her first baby sick and vomiting and trying to recover; held her hand, rubbed her brow, made me smile and provided those moments that induced healing that only a mom who loves to mother and nurture can give.
Friends who made sure I felt loved and fed, acquaintances who sent notes and some who even made sure I was fed… they came out like a force field and I was unprepared for the support.
I did not expect any of that, support that is… from anyone outside my immediate family. 
I am not sure why. I tend to keep to myself… I have been deeply burned by some people I thought were friends, so I tend to keep to myself and not talk to many folks. So, when I got the “NEWS” I had to let go, I needed help, I need a group of people to have my back (and not throw me under a bus without a chance to tell my story) and they came out of the woodwork, and I was touched, and am still touched, humbled.. tears are in my eyes now, as I write.
Even friends who I exchanged superficial texts with stepped out and were present to me. Near strangers offering so much more than good wishes.
The world is truly a magical place filled with so much good. I can’t wait until I am free to frolic (without pain) and pass on that kind of goodness… for now, I heal, and am blanketed in gratitude that I have a tribe whose large size I didn’t know.
~ ~ ~
I was driving and reflecting on what good things have happened to me in my life over the years and  in a brief flash of mental inner dialog that occurs in seconds I noticed that I drove by a building that once housed a flower shop in the 80’s when I was in high school and which was made famous by a stop by then president Reagan who went to buy flowers for his mother-in-law who lived up in some super fancy “estates” near my house.
I remember that visit, he was new to office and it was a stop that made the local news. The other funny thing is that night some friends and I went to visit a friend that lived in those “estates” and was a neighbor of Nancy’s mom… how do I know,, because of the plethora of secret service who hung out in the neighborhood. I remember a group of us running to the car from my friends house and the agents getting a little “jumpy” – but those were different days. Now we would probably be shot, then we just got stopped on the way past and told to behave by men in dark suits that wore sunglasses at night. 
I smiled at this memory as I drove away from that building that once housed the famous flower shop; I loved high school. I had friends whose company I enjoyed. I had good times… I was a little bit of a rebel, but I had a heart of gold, and the naivete of a child.

Day 7 – 40DOW – Curious George is my new hero

There is something kind of magical that happens when you get a serious diagnosis… You get a new level of patience and tolerance, and you hold closer to what’s unacceptable and intolerable.

It is as if one gets knighted and imbued with certain super powers. Probably though, it is just some form of self examination that allows for some serious decision making.

I am not dying, but this may be the closest I get to that in a while. A friend wrote me last night about how I was now in the middle of my “bull fight” and that I had an arena of friends who were supporting me through this. I was struck by their using this metaphor not only because I am a bullfighters daughter, but because there really was some intense truth to what they wrote (and also because they hate bullfights so I was surprised to see them use this).

Without delving into a treatise on bullfighting, I will say that the bullfight is not about the torero, it is about the relationship between the bull fighter and the bull, each playing into instincts and their very special mortal relationship. They are each trying to figure the other out, and while they are separate, they form a symbiotic relationship. I am here in this ring, and I am that relationship, the instinct is driving me to examine my surroundings, and as they said, I have a cadre of people supporting that.

Which brings me to something else that has been swirling in my newly seriously introspective mind.

I recall the day when you heard that someone had cervical cancer that a pretty loaded assumption was possible made:

The woman (since men do not get cervical cancer) was a loose ho-bag and had proverbial round heels

I have heard this whispered amongst the most gossipy of people even to this day. So, yes there is a certain fear of assumptions that people (stupid people) may make about me. I know that I have never been a loose ho-bag and I most certainly do not have round heels. And I don’t think that what is happening is the direct result of any karmic like indiscretions I may have made.  I am a human with a cervix and it has betrayed me (yet again).

I sit here newly diagnosed with something the most heinous of gossips use to tear people down and between that and the whole mortality associated with the word cancer causes for an astonishing amount of reflection. Self-reflection certainly, but also about the world I live in; the friends I have and thee ones I had, the adventures, the quiet moments, the rage, the gentle, the sweet peace when my son rests his head on my lap, the Ebola crisis, our southwestern drought, or awfully separatist politicians, the atrocities in the Sudan… all these and so much more… they have become different in some ways now.

At the root, though, these are extensions of curiosity, which is a true animal behavior.  There is something primal about trying to understand what is happening around you.  A certain fierceness comes, priorities seems stronger and there is a certain curiosity that reigns over me. It is like an adrenaline rush, but in a very sedate way (much like the adrenaline the human and the bull need to control when in the ring). I consider how the social animals (outside of humans) interact with each other. Elephants are amazing at this, but so are so many other animals. And there is something beautiful in that… in feeling close to that which unites all of us animals as we try to make sense of the world around us. It connects me to my surroundings, makes me feel a part of something whole and those who think this kind of thing (introspection) is something selfish, elitist, or wrong are just temporarily disconnected from the life death continuum.

Day 6 – 40DOW – another stage, perhaps.

In Old Norse the raven was a popular symbol and represented the power and wisdom of the mythological god Odin who would strike fear into the hearts of even the bravest warriors with his two fearless ravens sitting on his shoulders.

Me Hello again, 3:00am. You kind of suck for me right now, though I recall the days when you were fun and I was much more invincible.

I’ve moved into the next stage. Or is it another stage?
It happened the second I hung up on the last person in my inner circle.
The very second my finger pressed the hang up button.
I felt stupid and ridiculous for all the crying and sad.
This is stupid, I thought to myself.
You’re trying to get attention, I scolded myself.
You are making more out of this than it deserves, my inner voice admonished.
I felt ashamed for my tearful calls and emails to these people who mean a lot to me. 
My brain rattled off a list of the reasons that supports its claim that I am swimming in ridiculous.
There was a tiny voice telling me this was all OK. These are scary new words and it’s ok to be scared. But tiny voices are easily shut down.
Is this denial? Acceptance? Are there even progressive emotional states after a diagnosis like this, like the stages of grief?
I know I am not going to die, so why all this fuss? Is it really all that ridiculous that I want my mother and aunt with me, even if this causes them even bigger inconveniences? That I want to monopolize their time and play paper dolls with them, like I used to do when sick and at home as a child.

I always loved paper dolls from other cultures

And the vestiges of anger are poking through in those who mean well and tell  me what to do, or discount my thoughts on what I know may be my treatment options. This is my damned body, not yours.
Is there an angry denial phase? Am I really angry? Am I in denial?
I hate that as my body recovers from the cone biopsy, the aches and pains tease me into thinking that the cancer has taken control… that it has, in a blind rage at the attempt at its excision, rallied like a fire breathing mythical beast and waged a war inside me that I am slightly oblivious to and thereby allowing to grow with wild abandon as I navigate the days until my oncology appointment.
I decided that if it should have a name that somehow the notion of carrion should be involved. I have decided to invoke the ancient Valkyries of my genetic past, the ones that were ravens that became the ears (thought) and eyes (memory) for Odin, that cleaned up the battle fields by eating away at the carrion that resulted.
I want those ravens to remove my carrion and bring me the wisdom to do it bravely.

Day 2 – 40 DOW – was pretty shitty

Not my cells, but similar enough cells

Cancer

in-fucking-situ (I hope)

A cause for celebration. Really. They say.

But holy fucking shit, calling an oncologist for an appointment for yourself is something I wouldn’t wish on anyone, Not even someone that could use a strong life lesson or a swift kick in the butt.

You get that call. The one that gives you the pathology report and tells you next steps and it is so heavy and burdened that the air gets thick and it is almost impossible to breathe. Partly, I wonder in retrospect, if is so that you don’t miss a word about what you are being told.

The call to the overly cheerful oncology office to book your appointment.

The calls to those you love. Your husband, your mother. You aunt.

Contemplating how to make the calls to your other loved ones; your father, your cousins, your friends.

Return calls. the news spreads. You get calls from your brother, A message from a professor from when you were back in medical school (who is now a close colleague to your mother).

Priorities mulled.

Pathology reports faxed. scanned. emailed.

Decisions to be made,

Priorities re-mulled.

What do you tell your young children so they can navigate the stress they know you are feeling without giving them scary words that will make things worse.

What do you tell your friends. How do you tell your friends. Do you tell your friends? It is easier to tell strangers.

How do you navigate not knowing what the oncologist will say without Googleing yourself sick.

And again, priorities re-mulled.

Fighting the tendency to blame yourself.

Trying to be strong because you need to be for others, because the last thing you need is to take care of someone else when this is about you (and not them).

Trying not to listen too closely.

Wondering if you will lose friends. Knowing you will (I’ve worked in cancer, it happens) wondering who it will be.

Wondering what do you do. Do you burden friends with the news?

Having to deal with the part of myself that feels socially awkward and introverted.

Remembering to breathe.

Philip K Dick said that cancer was “the process of creation gone wild…”.

Thoughts of prudence and of recklessness. 
The mantra of thinking “it could be worse” repeatedly. intermittently. nauseatingly.

It was the best of thoughts, it was the worst of thoughts

“I have walked myself into my best thoughts and I know of no thought so burdensome that one cannot walk away from it.” ― Søren Kierkegaard


Oh Kierkegaard… somehow, I have come to imagine that should you have become in this more modern current era, that  I would have considered you to be something akin to a tragic hipster with an ironic mustache in a constant state of existential angst. (wink)

I have been walking. A lot. 

Actually, it is better said if I write that; 

WE have been walking. A lot. 

For me it came about because of a new bra.  I hate shopping, and I hate buying under garments. I actually love pretty underthings, I just hate trying them on for “fit”… but brassieres, like all good things… go wrong and new ones must be purchased.

So, off I go and find myself moving in to larger and larger sizes… which is the horror of shopping to me,

FINALLY, I find three bras that fit and have some element of being pretty and sexy and are not useless pieces of lace sewn together to no viable effect but are not something that were solely designed to be “sturdy” or “durable”  which renders me positively grateful, because I still recall the days when I spent way too much money on really beautiful undergarments…  and so, I purchase them.

Then I get them home, and start the mad dash to remove tags… only to find myself actually reading the tags like I were at the breakfast table wasting away my morning by reading a cereal box.

The damn tag said  “full figured”.

I have never been full figured in my life.

I have even made jokes that the bowl part of a champagne  coupe was not designed after the beloved breasts of Marie Antoinette, but mine!  

Champagne coupe



That is not a full figured size.




This is full figured:

Full Figured Champagne Bowl (and not an accurate reflection of my current bra size)




Except, that is, when I was breast-feeding and had breasts that must have been GG’s (double G!?!?!?!), it was impressive and shocking!

So, anyway, as I am won’t to do and why I hate shopping I sank in to a funk and realized that I probably weighed way  too much and that I needed to turn my “full figure” into that figure I had some pride in. 

So, I proposed a walk to my dear husband, and he accepted. 

And so, it has been a few weeks now and we have managed to walk quite a bit. We walk about in a park near our home which offers us an clean 7 kilometer walk (4.5 miles) and 8 km if we move a bit around the neighborhood on the way home.

It has been an interesting time for us as we have gotten to know each other a bit better in the dynamic that kind of time together warrants (it can be around 90 minutes of walking).

But the other benefit is that it has given me time to mull the stories in my head for the story (book, hopefully?) that I am trying to write. It has given me clarity in how to get to the subtle nuances of the experiences I am basing some of the stories that I want to include, in to the story.

The story is in the Third person, but in writing the background pieces I find that am more often defaulting to using First person… it has been interesting to note that the shift in narrator has come about as I walk. Maybe it is because this is in an effort to own the personal experiences and so I can more cleanly reflect where the stories need to move in to the realm of magic realism.

So, these walks are helping me move away from being the full figure I so despise in myself in a physical manner, and yet are profoundly helping me make my life experiences become “full figured” in a allegorical manner for the stories I am writing.

The even better part of all this walking and writing is that I can see more clearly see who it is that I am… as a person (even if I currently have to wear full figured bras). 

For some creative twits (I think it is much funnier to call them twits, than tweets): 
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